Opiates!!!

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I got home from the University of Washington Pain Management Clinic a little while ago. I’d been sent there by my new doctor who wanted a review of my condition so she could treat me appropriately. It was an interesting experience. We went thru the usual tests of range of motion, gait analysis, mobility of limbs, needle pricks to see if I felt the sharpness (I did) and so forth. Nothing new from this testing and no new information about what was going on with me. But I did gain some important new knowledge.

I learned that the brilliant legislators in Washington State have decreed that no one shall be allowed more than 120 mgs. of opiates a day. Period. No discussion, no rebuttal, no recourse. This is a bit of a problem for me, you see, because for the last dozen years or more I’ve  been taking close to 300 mgs of Morphine as well as 15-20mgs of Dilaudid (Hydromorphone) a day. Imagine my surprise when they told me this. I was not shocked, because I know what the climate of the country is like these days around opiates. I was expecting something, but nothing this extreme. I mean they wanted to cut me back over 1/2 of what I’ve been taking for Years! Fuck!!!

Part of me wants to go down to Olympia and break the legs of every (probably Republican) legislator who voted for this draconian measure and leave them in pain forever while they beg for some relief. After all, that’s what I’ll be doing pretty soon – begging for relief – as soon as they drop me down to the 120 mgs. I’m now allowed. Sigh. I have what’s called Chronic Intractable Pain, so called because it’s constant, severe, disabling, and causes detectable changes in your heart rate, blood pressure, etc, and if it’s not treated it ends in death. Yep, a fun diagnosis for sure. I’m lovin’ it myself… I can function, but I’m always in pain and if I do much of anything it spikes so that I have to take some dilaudid for breakthrough pain. It helps a lot but it doesn’t make it go away completely.

I’d changed docs from the one I’d been seeing for 13 years because he stopped prescribing opiates. He never asked me to pee in a cup during that whole time because he trusted me not to mess with my meds, and I never have. Why would I? It’s Stupid! But the new doc at the UW clinic requires me to do that so that they can see if I’m honest. I am, and soon they’ll learn that, if they can keep treating me that is. I dunno if they will or not. Most doctors won’t touch me with the proverbial 10 foot pole. I sure hope the UW helps me or else I’ll be so sick I’ll be in the hospital for withdrawal symptoms. I mean 300 mgs a day is a Lot of morphine, let alone the dilaudid.

I understand that people are freaked out by the rising epidemic of opiate deaths due to mis-used pain medication. I feel badly about this. After all, addiction is a disease, and maybe they can’t help themselves. But a part of me is furious at them and at the politicians who seek to make headlines with new laws to keep people like me from getting the medicine they need to live a good life. Before I got the opiates I was a mess – I fit the portrait of Chronic Intractable Pain I described above. I spent a lot of time resting and I didn’t do a lot because I hurt too much. I still hurt, even with the meds. What will I do without my usual dose? I’m freaking out here!

No, I’m not – yet. I’m trying to stay calm. After all it’s only been a few months that I’ve felt relatively stable with my Bipolar Disorder. I’m not out of the woods yet and I still get suicidal and all, but I’m doing better than I have in ages. So imagine what this will do to my mood. Pain and mood are inextricably intertwined and if I hurt I often get depressed, and vice versa. It’s a vicious circle and I’m trapped in it for life. I’m not playing victim here – it’s just my reality. I do my best to live with it and I do pretty well, now – but what about 6 months from now? Where will I be then?

I hate that because some people overdose on opiates and die that the country is overreacting so severely as to limit what pain patients truly need to be OK. Obviously none of these politicians lives with severe chronic pain. If they did maybe they’d have some compassion for us. I’m angry at them and at the ones who abuse the opiates I need for survival, thus keeping them from me. The old rotten apple syndrome for sure. I never get”high” from these meds. I’m just in less pain is all. So for them to take my medicine away because some people do get high is totally unjust and wrong. Just because a few people screw it up for the rest of us is no excuse for this travesty. I’ll be writing my  congressperson soon, you can bet on it. Not that it’ll  do any good, but maybe I’ll feel like I’m doing something to change things that are so wrong. It’s an overwhelming feeling to be in this position.

I’m 65 now, and I’ve been living with chronic pain since I was 25. That’s a long time to live in pain. I hate it. But I have a good life because of the opiates that keep me functional and not in so much pain. I can live my life as I choose to. Maybe I don’t deserve to, I dunno. But that’s my depression talking. I do deserve to be OK and not suffer so much. We All deserve that. But the politicians who want to control our every breath don’t give a shit, and they make the laws so I have obey them. I’ll go along, because I HAVE NO CHOICE!! Such is life, eh?

Pissed off royally,

Steve

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Robin Williams – Too Sad

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I’m very sad again today. Yesterday I heard that Robin Williams had committed suicide. I’m having a hard time with this. He was my age and according to many observations he suffered from Bipolar Disorder like me, tho apparently he himself never said as much from what I’ve read. But he sure acted like it didn’t he? I was always amazed at his frenetic energy and classic manic behavior in his routines and films. He was a comic and dramatic genius as an actor and a kind and generous soul as a human being. I can’t even begin to say how much he gave to me and others throughout his life of such sorrow and joy. He did what so many of us do with this illness – he hid his struggles well, tho he was also very open about them, but he couldn’t hide it in the end. I already miss him so much.

This event is what is called a Trigger for many of us. It’s a situation that flips our emotions into a negative state that affects our ability to cope and stay OK. It pushes us towards whatever form of mental illness we carry with us and adds to our difficulties of staying well. Anytime I hear of someone who dies by their own hand due to the “push” of Bipolar it triggers me and affects me deeply, and this case is no different. In fact it’s a really hard one because of how he made me feel and how much I identified with him. Not that I’m a comic genius or anything. Far from it. But I related so well to his energy and compassion for the world. He did so much to make it a better place just by being himself. Like so many of us with Bipolar he used the impetus of the illness to fuel his comedy and dramatic turns on screen and TV. Like so many of us he also didn’t hide that energy from us, he reveled in it and I loved him for that.

Tho he never said he had Bipolar Disorder there are many who would look at his life and say it was obvious to us. I’m one of them I guess. Like his most famous mentor Johnathan Winters, who also suffered from Bipolar, he was a lightning rod for that incredible energy that made his work so real and so human. He embodied so many great character traits in his work and life and made the world so much better thru his presence. It’s being hard to write this as I keep crying, which I keep doing, and I can’t see thru the tears. It’s been like this ever since I heard about it. If I weren’t doing as well as I am right now myself this would push me into a depressive syndrome quite easily. Triggers do that. Just like what happened when my cousin’s wife died of Bipolar back in February. It really got me bad and I was so depressed for weeks after her death, tho she didn’t kill herself it turns out but mistakenly took the wrong meds and passed out and fell into a swimming pool and drowned. I feel the same way with hearing of Robin’s death. It’s triggering some bad emotions in me and I feel so sad and bereft.

You see I look at Robin’s life and how he was so very successful and how much money he had and the fame and acclaim that filled his life. And I wonder how if he lived with all that and more in his life and still couldn’t find a way to get thru it without killing himself, how will I ever do it myself? It scares the shit out of me. I look at him and see how easily it could be me there on the floor. I don’t have the resources he did, but I have good support, and tho he must have had it too, it wasn’t enough in the end. Will my support be enough for me? I wonder… Especially the fact that he and I are the same age and come from similar cultural backgrounds of coming up in the crazy 60’s and all affects me. It just feels too close to me and I fear for my well being. But as I said I’m doing well right now and am not prone to such depression at the moment so I think I’ll be OK. But it’s challenging and hard and I hate it. How will I be tomorrow? I really don’t know. Still sad I expect. Still filled with these difficult emotions.

I’m not going to write about all the films he was in or the things he did to help the world. You all know of most of those things and there are lots of articles out there now praising him and mourning his death. This is just a very personal response from me about his decision to end his life. I don’t blame him at all tho I’m so sorry he chose this path. But I’ve come too close to choosing it myself, in fact I have in the past and I still get close to it too often so it’s hard. What I have for him is compassion, and I’m tying to have it for myself too right now. I just wanted to say a few things about him and how he affected me and how triggers can come at us from out of nowhere at any moment and impair our ability to cope and live our lives. I hope this hasn’t triggered any of you because of my writing but if it has I hope you get thru it as I’m trying to do. Being grateful for Robin’s work in the world and his personality and his ways of being so real about his struggles is important for us to do.  He was a good model for us in how to live an amazing life with Bipolar dogging your steps, even tho he ended his own life in the end. I understand him I think. That’s why it’s so hard. I get it. I suspect many of you do too and I hope you do OK with this tragedy. I hope I do too. I guess only time will tell.

Missing his Manic Presence,

Steve

Note: photo as Mork by Everett Collection/REX

Bored With Bipolar

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You’d think that after almost 19 years of being diagnosed with Bipolar Disorder and 63 years of living with it, I’d have come to terms with it by now. And frankly I have, many times. But right now, and for the last few months, I’ve been at odds with my illness and it’s been anything but acceptance that I’m feeling. I’m feeling ripped apart by this disease that has so impaired my life that I have spent hours and days and weeks feeling like I should just kill myself. That I should just end it all and be done with it.

This where it gets Boring. I feel so totally boring in my depression. I’m not a fun guy these days. I don’t feel like laughing at funny things or enjoying the accomplishments I’ve had in my life. I feel like this is too much for me to handle and I just can’t keep doing it. I’ve talked with my psychiatrist and counselor about going into the hospital just for a change of venue for awhile to see if that would kick start me out of this state I’m in now. The Psych. even suggested things like ECT and Vagus Nerve stimulation, all of which scare the hell out of me.

But I need to do something. We also talked about anti-depressants. It’s been a few years since I tried one of them and maybe it’s time to try another one, tho so far I’ve failed on all of them and many have made me more ill than I was before I took them. So I don’t have much hope that they’ll fix things any but I have to keep trying. I’m working so hard on trying to change my attitude and perspective and focus on gratefulness and the abundance in my life. I have a good life and I know it, but it doesn’t seem to make any difference now. I just wanna be done with it all. This is so boring and is why I live a life that is just impossible. I so miss my hypomanias when I felt great and like I could take on the world. Sometimes I went too far with them but I’d take that any day over these crushing depressions I live with these days. A little up time would be nice…

But those times have ended pretty much due to taking an anti-psychotic for several years now. The Abilify cuts down on my hypomanias and keeps me on the low end of the spectrum. I don’t get to experience those times of intense creativity and joy and brilliance that accompany hypomanias. All I get to live with is the depression and how it eats away at my soul. I feel like I’m dying and that I’ve gotten into such a deep hole that I can’t even discern any way out of it. I wrote awhile ago about being stuck and that’s still how I feel.

I don’t have anything interesting to say here, which is why I titled it as I did. I’ll admit that being in touch with a depressed person is a boring thing to have to do. We’re just no fun and we’re a drag to be with. We had company over last night and it was all I could do to pretend that I was alright and could just seem to be OK even tho I’m not sure I was. I so wish I had a space in my life where it’s just OK to be depressed and alone and not impact others with my situation. But I’m in a relationship and that means I have to try to be OK for my partner at least as often as I can just to be fair. He has to put up with so much. I don’t understand why he bothers. I don’t think I’m worth it at all anymore.

I used to have a decent opinion of myself and felt like I had a handle on this Bipolar Disease. But I don’t feel that well at all anymore. If feels like I’ve got so much going on that it will be impossible to ever regain it. I feel so useless and like I have no reason to live anymore. I’m in deep despair and disillusionment. If it doesn’t break soon I really don’t know what I’ll do. I can’t kill myself because it just wouldn’t be fair to Louie and my few friends to do that to them. I do know better and that it’s a permanent solution to a temporary problem. But I don’t really care. I’m too far gone. I had a good friend tell me that any one who tried to commit suicide is just a coward and it really felt bad since I’ve tried to kill myself before many years ago and have never felt bad about that. But now I do. I feel like other people will judge me for it and wouldn’t understand why I did it if I did. It’s all boring tho, isn’t it?

I don’t have any morsels of wisdom to share today. I need help badly and I don’t know where to get it. I’ve slipped so much in my self esteem and self perception that it feels like I’m a totally different person than I used to be. I saw my MD the other day and when I told him I was stuck in depression and that I was stuck in feeling pain and stuck in the knowledge that I’d be in this state for the rest of my life that he just shut down on me and it’s like he didn’t even care anymore. This may be my perspective and he’s fine with me but I dunno. I think he, like me, was bored with me being still upset that I have to live with taking all these damn drugs for the rest of my life just to stay alive. Not to thrive but just to be alive. It hardly seems worth it. It doesn’t in fact.

Anyway I guess I should stop now. I know some people have been worried about me in that I haven’t posted here in such a long time, and I doubt that this post will ease their minds, but at least now the truth is out there still and the angst I feel is clear. At least it’s the true experience of someone who has Bipolar Disorder and can’t control it at all at the moment. Oh I can fake it pretty well for an hour or two but it’s hard to be upbeat for long. I just wanna hide out and not see anyone at all or interact with the world at all. And I have people coming to visit me soon and I don’t know what I’m going to do. I definitely can’t be present with them for too long but I’ll try.

So enough whining and complaining and pissing and moaning. I told you at the start it’d be boring and it sure is isn’t it? I long so much for a change and it feels like I just can’t pull it off by myself and the help I have isn’t doing it. I’m open for something new to try and see if it’ll work. So far nothing is effective and that makes me feel despondent and discouraged. Maybe someday they’ll find a cure for this illness, but until then I’ll keep trying to stop being so boring and be more positive. But I have no faith that I can do it. I guess we’ll just have to wait and see, eh?

Wishing you an interesting life,

Steve

Stuck!

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I have a good life. I have a wonderful partner who loves me to death. I have a good home to live in and I’ve been able to improve it and add to its beauty, especially thru my love of gardening and what I’ve done there. But I’ve also added to the inside of the house and it feels more like mine instead of one I just moved into 4 years ago. I have good food to eat and a nice car and clothes and all I need to survive and be happy. But I’m not happy, and it’s driving me mad.

Or maybe I’m already there. I can’t seem to stop my brain from telling me that I’m a worthless piece of crap and I should just kill myself to make the world a safer place from idiots like me. It’s nonsense I know and I’m not a bad person. But this Bipolar Disorder really has taken hold of me right now and it won’t let me go no matter what I try to do.

I’ve been diagnosed with this dreadful illness for almost 18 years now and sometimes I really think I’m getting much better. I guess I am in many ways. My counselor and psychiatrist both think I’m doing well and treat me like I’m into recovery and on my way to feeling better. But it’s just not true. I’m still a mess most every day lately and it’s getting very challenging to live in my psyche.

I’m still in the Underworld despite the fact that I usually seem to come out of it around the Spring Equinox. I did some as I started to see the plants begin to bloom and grow. That helps me a lot to see Life arsing again and fulfilling it’s promise of beauty and continuation of existence. It’s so obvious to me that Life will find a way to continue and things happen as they do without our input or actions.

I have so much going for me I can’t understand why I’m so messed up and so full of suicidal ideation that I spend time every single day lately thinking about how to kill myself. I won’t of course. I couldn’t do that to Louie and my friends and family. I know this but I don’t know what to do. I’ve tried so many of my tricks to get my mind to shift out of this mess I’m in but I’m not having much luck. I’ve written a lot here on how I use certain ways of thinking to change my thoughts but right now it’s all bunk to me. Nothing is working.

You’d think I’d be on anti-depressants or something but I can’t take them because they make me crazier than I already am and have put me into the hospital more than once when I’ve had a bad reaction to them. They hurt me and I long for a pill or something that will change my negative self image to one that is more in line with reality and lets me enjoy my life again.

I know it’s terribly hard on Louie to see me go thru this. We talk about it often and he helps me so much just by listening to me and letting me know he cares. He saves my life more often than he knows. I’m so lucky to have him in my life and without him I’d probably give in and just off myself. I can’t seem to find my Joy button anymore and it hurts so much. Depression is a real physical disease and it Hurts to be depressed in your body as well as your mind. I’m already in pain from injuries I’ve sustained in my life and my dose of pain killers would kill most people.

So when you add in the depression it adds itself to the pain of my physical body it becomes an overload and I can’t seem to maintain. I fake it a lot. I think most people think of me as a positive person trying to make the best of a bad situation and that’s probably true. But it feels so phoney and fake to me to always have to pretend to be OK when I’m really not. It’s still too scary for me to come out about my Manic Depression in many venues and so I suffer in silence as so many of us do.

I don’t tell my neighbors, usually, what’s going on or my friends even. I don’t wanna bother them and have them turn away from me like so many have in the past because of this illness. It’s caused me to leave so many situations that just caused me distress and fear and led me to worse states so that I’m left with only a few friends now and I’m isolated too much of the time. I know I need to get out more but I feel too lousy and can’t seem to break out of the cycle.

I know this is a really lousy post and I apologize. This has been building up in me for so long I just had to vent a bit and explain how it feels for someone who is as together as I am to go thru such terrible disillusion. I can’t recognize myself anymore. I don’t know who I am or why I’m here and I’ve usually known that. I’ve had visions of my life since I was in high school and I’ve followed them, often to glory but often to falling apart.

In the past 18 years I’ve gone thru so many changes. From the initial recognition of the illness to learning the tricks of the trade in how to keep yourself well to falling apart again and again to being OK again now and then. But it’s been awhile and I’m feeling the loss of my usual bright self and energetic persona. I just feel like a wet lump of dough or noodles overcooked and it’s like moving thru oil or honey just to walk some days. It’s very physical as well as mental.

I’m hoping that things will shift soon and I’m still trying to be OK. I talk to my counselor and psych. and to Louie and other friends a bit but not too much. Maybe it’s time to go back to the Bipolar Support group I used to go to. I wonder. Sometimes others with the same illness can be good support for one another and it’s helped me in the past. I need help now. Badly. I really don’t want to implode and end my life. It’d be so stupid and I know it always changes, but it’s so hard to wait it out and feel so powerless about it all.

My diagnosis is that of Bipolar Disorder with rapid cycling and mixed states, which means I cycle back and forth from high to low too often and often will be in both places at once. It’s very confusing when I can look at my self and see how great it is and then in my inner experience it’s so terrible. It’s truly cognitive dissonance. I can’t seem to hold onto my brain and keep it running on the smooth track of self love but instead find myself on the hate train to hell. I’m so tired of it.

Is this going to be the way it is for the rest of my life or will they someday find a cure for this horrible illness that has so wrecked my lfe and made me into a different person than I used to be? I don’t like who I am right now at all… I have hope but not much. The same goes for the physical pain I live with. Together they overwhelm me too often, like today when I hurt so bad I’m at a 7 on a 10 point scale and it feels like it. I’ve had to take extra pain meds already and it’s only 11:30 in the morning.

I could use more pain killers it seems. But with the way things are going with the pain medication situation it’s so tricky just to get what I do. I can’t imagine what I’d be like if I lost the morphine. I wouldn’t be able to even function. I’d be in bed and in pain all the time and would eventually give in to it and just give up I suspect. Add in my occasional migraine and it’s a total picture of pain. It’s just too much.

OK I’ve talked enough here. I’m sorry this isn’t a more positive post. I am trying to get better. I really am.  But it seems so impossible that I feel the way I do when I have such a good life and it feels so unfair to me. Not just to me but to Louie and my other friends who have to deal with my moods and pain all the time. It’s hard on them and I’m grateful to them for staying with me and being my friends. I couldn’t do it without them.

I hope that my honesty and lack of inhibitions in talking about this will help others who suffer from this same illness feel more comfortable talking about it themselves. It’s OK, and even necessary, to air our hard stories about how difficult this illness is. I’m a big fan of education and if even one person reads this and understands more of what it’s like for us it’ll be fine with me. It’s Real and we’re Not faking it, despite the stigma we face… This is Life for way too many of us…

Wishing you a good day today,

Steve

I’m an Angel!?

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I hardly know where to begin with this new award. It’s hard for me to envision myself as an Angel. I’m so many people you see. I go back and forth from being such a nice guy to being a jerk and from being happy and bright to sad and depressed so often with my Bipolar disorder. It’s difficult to see myself as an angel in anyone’s eyes, but I am in Dr Rex’s sight and it brings tears to my eyes. I’m so grateful for this look at myself that is so hard to take in and yet feels so good to receive. I’ve talked a lot about Dr. Rex on my blogs and I still find new things to say. I encourage you to go to her blog at: http://hrexach.wordpress.com/2014/04/03/a-new-award-the-angel-award/ and read what she has to say about this award.

It’s a testament to her character that she has been given this award and I can surely see why she has it. She does such a good job of “Being There” for so many of us. She is an Angel in the best sense of the word as I understand it. She loves her readers and her work and is passionate about how she presents it all to the world. She’s very kind and loving and truly cares about the world and its inhabitants. She is an Angel for sure! I’m very grateful to her for giving me this award. It’s a relatively simple one, with no particular rules, so I’ll just follow her excellent lead and say that if you’re reading this blog you’re nominated for this award by me. It means that you care enough about what I have to say to read my work and that makes you an angel in my eyes.

I’m so grateful for all the wonderful readers I have here on Naked Nerves even tho I know that it’s probably challenging for some folks to read some of the topics I write about. I try my best to be real and write about the things that affect my life and those of others who have Invisible Illnesses and how we cope in the world. It’s a hard row to hoe but it’s worth it to receive this kind of wonderful feedback from Dr. Rex. I’ll try my best to keep being an angel in the ways I’m able to and to take in the award and make it feel real to myself.

You’re just witnessing how hard it is for some of us to accept compliments when we’re not feeling our best or worrying that we’re fakes and phoneys. I feel that a lot, so getting this kind of feedback is important to me and it’s important that I “Get It” and rely on someone else’s vision of me instead of just my own. So in that vein I thank you again Dr Rex, for your kindness and vision in granting me this award. I will do my best to live up to what it can mean. Thank you to everyone who reads this and comes to visit my site as well. You’re all Angels and without you all I wouldn’t even bother to be here. You’re the reason for me to blog, and I value you all immensely. Together we build a better world, one blog at a time…

Keeping the Faith,

Steve

Inside a Hypo-Manic Episode

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“No I’m not just upset. I’m way beyond that. I’m truly enraged. I can’t stop my heart from racing and my pulse is pounding. I feel like I want to kill someone, anyone, but especially myself. I want to blow the whole world away. I feel way too much energy in me right now and I can’t sit still.

My brain is boiling and my eyes burn. My head feels like it’s about to explode and the energetic spasms in my body are thru the roof. I have to do something really quickly to stop this or I’ll do something I’ll regret later I’m sure and I don’t want to do that. But I feel so lost and disoriented and out of control. I Hate this shit.”

That was me yesterday when things were really bad. I couldn’t even write about it because I was too irrational. I wasn’t making any sense and I knew it and I had to take action, as I describe below, to keep myself from doing harm to myself or others, or just plain trash my belongings. And I still feel it today too, damnit. Why do I feel this way? It really doesn’t matter. What matters to me is How I feel.

If there are ever any times I doubt the manic part of my bipolar diagnosis it’s when I stay depressed for so long I think that part of me has gone away. It takes times like this to realign myself with my full nature to recognize that the manic part of me is still alive and well, unfortunately.

I usually stay well below the midline with my moods. I’m usually depressed or on the verge of it. It’s my default state of being. But now and then something happens to me that makes me so angry, irritable and enraged that I explode and lose it entirely. That’s when I recognize the mania that I embody as well as the depression.

Now is when I feel the Manic-depressive aspects of this damn illness. I can stop these feelings better than I can the depression because I have drugs to help me with mania and I don’t with depression. Still, I got so angry and enraged yesterday that I thought I was going to do something really bad to myself or something else. I really felt like destroying everything.

So I took a dose of my anti-psychotic and a dose of an anti-anxiety medicine and in time they calmed me down to the point of being almost comatose. I could barely move after awhile and had to lie down on the couch to decompress and just rest I was so wiped out from the drugs. But that’s a better place to be than destruction.

Technically I’m only supposed to feel Hypo-mania, not True mania, because I was originally diagnosed as Bipolar II, which doesn’t include getting truly manic, just a bit below that, which is called Hypo-mania. That’s mostly true for me in my life. But hypo-mania is just as dangerous as mania if you don’t control it. It can still kill you or make you do things you’d rather not do.

It may not last too long but it lasts long enough to totally degrade my thinking and make my life a living hell. And it’s not so easy on my partner either. He tries to help me but I get so shut down that I refuse all offers of help or suggestions of assistance. I get totally locked up in myself and I can’t move or act constructively.

This is very different from depression. When I’m depressed I feel like I deserve to just die and that’s it. I feel hopeless, discouraged, in despair, and all the rest of the stories any of you who suffer from depression know all too well. But I can see how I’m being and ask for help and receive it. I can change my moods.

Mania is very different for me. I generally lose most of my self awareness. I was barely able to hold on long enough to take drugs yesterday and if I hadn’t done that I’d have been lost for sure. I can see how when I have true mania I totally lose myself in it and can’t begin to act even as well as I did yesterday. You can’t tell you’re messed up is the thing. You think you’re normal. But you’re not…

I’d love to have a handle on these extreme mood swings I have. I guess I do have many of them if I look back at my earlier posts and see that I’ve talked about how to change your moods and thoughts many times. But right now it’s all bullshit to me and none of it is real. I’m just a mess and I feel like I’ll always be one so why bother living.

Shit, I guess I’m starting to slip back into depression even as I write this. Wow. How can I go from being so high to so low in just a few minutes?!! This is called Rapid Cycling and it’s common for a small percentage of those of us who have Bipolar disorder. It’s when we flip from one state to the other several times in a year, or in my case, in a month, a week or a day even. It happens Fast.

I also suffer from having Mixed States where I’m both too high and too low at the same time. I guess that’s what’s going on now because I feel both in my system. It’s like my whole body is flooded with chemicals that make me feel weird and out of it. Slow and draggy but hyper and antsy all at once. It’s not the drugs, it’s the Manic-Depression at work in me. It’s bio-chemical after all so why shouldn’t’ I feel it that way?

So now I’m totally screwed. I feel too hyper to sit and rest and too depressed to do anything about it. A classic state of mind for a mixed state and one I’m all too familiar with. But the fact that I’m shifting does mean that sometime soon I’ll be back to myself and be able to change this mood of mine. I’ve learned that when I feel too powerless with it all I just have to wait it out, like a bad drug trip, and it’ll change in time.

I just hope that I make it thru that time and don’t do something really stupid in the interim. I can tell I’m still on the edge with it all. I’ve even thought of deleting this whole blog because I feel so isolated in it so often. Why do I bother I wonder? No one cares… sigh. Wait! This is depressive thinking I can tell and I have to stop it. Now!

It’s amazing to me how much writing out this stuff can help me. It may not be interesting to you but it’s Real and it’s a glimpse of what I go thru on a daily or weekly basis. I do this dance a lot and it’s a hard one for all of us who have this Disorder. If you have it I suspect you’ll recognize my journey here. If not maybe you’ll understand more about what it’s like to go thru it.

In any event I hope it’s useful to someone out there. It’s been good for me to talk about it and I’m grateful for this forum to speak the things that we live with and how we are in the world. I’m Bipolar and I accept that. It’s an OK way to be much of the time, even tho it’s hell other times. In fact sometimes it really rocks so remember that too. I’ll write about that part when I’m really OK sometime, maybe. We’ll see, eh?

No longer enraged but still Hypo-manic…

Steve

“Being” or “Having” Bipolar

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There is much wisdom in saying that we Have a Mental Illness when we speak of our Bipolar Disorder. People say it gives us more Control. But there’s one aspect that is often forgotten. This illness by it’s very nature is cyclical, and our minds don’t always stay where we put them.

What I mean is that it’s fine and dandy to say you Have a mental illness and you Control it when you’re stable and doing OK and you can actually mean it. But when you go either too high or too low then you are Not in Control of your illness, By Definition!, and it’s silly to pretend you are, just because you use certain words to describe it.

I feel too much cognitive dissonance to think that I simply have an illness in the bad times. I’m Bipolar personified then. My emotions change and take me over and all I can see is where I’m at at the time. I can’t see out of my dilemma, even tho I Know differently.

It’s important to acknowledge where you’re at in life. If you’re in the pit or flying too high then you are Not in control of your illness. Why else take all those pills and go to therapy and do all the mind tricks we do to take care of  ourselves to be OK? If we weren’t messed up by the illness we wouldn’t need to do all that would we?  Of course not. We’d be fine like the rest of humanity… (some sarcasm here…)

Personally I use the terms interchangeably. I find them both empowering. I found it empowering the first time I was diagnosed 18 years ago at age 45 and I have ever since. I’ve had Bipolar my whole life and I’m considered a model of recovery by my Psychiatrist and counselor both. I do well mostly, and have a lot of insight into my illness. But I still lack that control much of the time.

Now and then I have some control, but I am Not in Control when push comes to shove. Then the bipolar takes over and I’m lost. That’s when I feel like I Am bipolar, deep in my bones. And you know what? I don’t mind calling myself Bipolar when I feel like that. It seems to fit me better than just saying I Have it. It’s more visceral.

I don’t mean this to be a downer for anyone. In fact I mean it to be empowering. I believe that You control your life in the long run. But being in control of your own life means accepting all the parts of it, even the Bipolar disorder that takes away that control.

In the end what matters most is how you relate to your illness and your strength to endure it. And I do mean endure because it’s hard as hell. Making peace with all parts of ourselves is crucial to this struggle. Accepting the dark parts of ourselves is a part of the Dance of Life, especially for those of us with Bipolar, and it’ll always be this way.

So think whatever you want. Call it by any name you choose. Relate to it however it gets you thru the night. It’s all good, but don’t think you have it under Control. Don’t make that mistake when you say you “just Have” this illness. It’s all too easy to think you have it all under control if you say you just have it. Be careful not to let it mean more than it can.

Words have power and the words you use will define things for you it’s true. But saying you Are Bipolar doesn’t hurt you. It means you know yourself. You know who you are in your worst moods. You know yourself deeply and fully and you accept responsibility for that knowing by claiming your identity. It’s OK to do this. It’s even wise I think.

And it’s also fine to think that you Have this illness. I don’t mean to imply differently. But I’ve written all of this just to point out that it’s not any one way all the time. It Changes! It’s cyclical and when it changes and you lose control, you have to accept where you’re at with whatever grace you can.

If that means saying you Have bipolar that’s cool. If it means you say you Are bipolar that’s cool too. Yes words have power, but only the power we give to them. We don’t have to lose what power we do have by always being “psychiatrically correct” in the words we use to describe our illness. We have free will in the definitions we use to talk about our lives, even if not completely in what our lives may have become.

Wishing you stability in the coming year,

Steve

Going Within at Sun’s Return

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Today is the day. A few hours ago the Cycle moved a notch and the Wheel turned and we started to begin the slow journey back to the Light. It’s been a dark time lately for many of us and it still is I know. But there’s a change in the air and it’s affecting us all, deep in our bones, as we go about our daily routines.

It’ll be a few days til we can see this change with the Light, as the sun revolves and the days get longer each day. Each day we have a chance to make new choices and to let go of the things that have been holding us back from our true selves. I know for myself I have a lot to let go of still, even tho I try to do it all year around. Aligning ourselves with the energies of the Cycle can help us if we just plug into them.

Today is the tipping point as I think of it. It’s the day when the energies are all beginning their slow turn toward the summer when it’s all bright out and the sun shines every day. We have to be out with the world more and deal with all the things that we’ve been putting off during this dark time. Maybe we should let them go first, ya think?

It may be getting lighter each day but we’re still coping with the fallout of the past few months of going into that darkness and it hasn’t left us by any means. It’s still in our deepest beings and we have to let it work in us and flush out all the detritus that has gathered in our psyches over the fall and into the winter.

I follow a calendar that changes with the cross quarter days- Mayday starts the summer, August the beginning of autumn, Halloween the start of winter and February the start of spring. So the Equinoxes and Solstices are actually the middle of each season to me. It may sound strange but millions of people have used this calendar over the centuries and it still works today.

So tho we’re at the beginning of the return of the light we’re still in the middle of winter and it won’t end till early February. By then when the groundhog can see its shadow again, we know that spring is coming soon and then we really have to be strong to stand the changes of that new growth. It may start small but it’s a grand scheme and it gets far more intense.

That’s why it’s so important to deal with the dark things now when it’s still dark out and in our psyches. We can access these things more easily now because they occupy our minds with dark thoughts and difficult ideas. It’s the time when we have the energy to go deep within ourselves and see those places where we hold all our darkest desires and passions.

It takes a lot of courage to do this. And it’s not easy to do at all. These things have often been with us for a long time, decades in some cases, but we know it’s time to let them go and we better do it now while we have the energies of the universe on our sides. It’s easier to go into the dark when it’s already dark. You’re more accustomed to it, so to speak.

I know it sounds crazy to think of purposefully going into the dark parts of ourselves. But it’s the way it has to be if you want to get over those things that have been holding you back from living your life. From being yourself, or in my case, from accepting myself. Lack of acceptance is one of those things that live in the darkness if it’s denied. You have to acknowledge it.

There are many things that live in that darkness – lack of self worth, hopelessness, self-hatred, despair, depression and all the rest of the things we deal with in our lives as people with mental illness. It comes with the  territory and it shifts as the seasons do in turn. Sometimes it’s easier but now’s not one of those times. It’s hard now.

I’m not suggesting that we should do things that are too hard for us, but I am saying that we have more working to help us now if we take advantage of it and use it to clear out the crap. We’re in alignment with the dark in ourselves now and it comes out daily for many of us unfortunately. But when it does what do you do with it? Do you let it take over or do you try to befriend it?

Befriending our dark places is the first step in coming to terms with them. Letting them be as they are and not trying to make them out as something they’re not is the best way to neutralize them. It’s difficult to do and I have a hard time of it myself but when I can do it I make great strides in my development. I can change myself if I try and make peace with myself.

There’s a theory that if we want peace in the world we first have to make peace with ourselves. That’s what I’m talking about here. Making peace with our deepest fears and lack of confidence. It can free up so much energy to do this if you can let it happen. What it takes is not necessarily an active process. It’s more of an allowing that has to happen.

So now as we start the journey back into the light we have a chance to allow our false selves to dissipate into the ether of our consciousnesses. Just let it go and be at peace with yourself. Sounds so easy doesn’t it? It’s not but it’s the path we all have to take to get to the other side of despair and depression. It can work if you allow it to.

Just be gentle on yourself and look within and see what you can find. Maybe you’ll be surprised at how easy it is to make peace with yourself and with the world as a result of it. This is called the Season of Peace by many and we can plug into that energy too. It’s all part of the Cycle and if we align to it we can make our lives more comfortable. Give it a try…

Happy Solstice to you and yours,

Steve

Physical Pain and Mental Health

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There is a strong link between physical pain and ones state of mind. I suffer from Chronic Intractable Pain, as well as Bipolar Disorder and the two are so often conjoined it’s difficult to tease them apart. In fact I usually can’t do it very well. When I hurt I feel depressed more often. And vice versa. It’s an ongoing cycle of misery.

I know this is obvious to anyone who deals with both of these things but maybe it’s not to other people, so I’m writing to educate as well as to empathize. Pain can shift your mood as quickly as a mood disorder can and when you have both going on it’s challenging.

I take medications for both these conditions every day to be alright. It doesn’t always work as I’d hoped tho and I’ve been trying to adjust things a bit lately to see if I can make a difference in how I feel. It’s being a mixed bag. I’m having to take a lot of extra drugs and I don’t like it. But I have to do something…

I’ve been trying to cut back on my morphine lately and it’s not going as well as I’d hoped. I take a large dose of extended release tablets so I can’t cut them in half and I have to go down a lot each dose. I went down a dose and I did OK, but I hurt a bit more. Then I went down another dose and did pretty well but I hurt even more. And my mood was getting bad.

When I went down the third dose I hurt too much and my mood started to go to hell. I was so depressed I was suicidal as I wrote in my last post. I couldn’t maintain well at all and was having a hard time holding onto my good feelings. So I decided that maybe it’s time to go back up on them again. I started out with one dose a few days ago and it’s already changed my moods. I hurt less.

Many of you may know that they used to give opiates for mood control back in the day. They did it because it works, tho the side effects are too dangerous to use it as a mood stabilizer and it kinda freaks me out that I’ve had this reaction to cutting back on my doses. I don’t want to be dependent on opiates for my moods as well as my pain control.

I haven’t spoken to my doctor about all this yet but I will next month when I see him. And if I can cut it back more slowly maybe I can do it and be OK. But it scares me to do it and have so much more pain and instability in my mood when I cut back. I take a large dose of opiates every day just to be alright and I see why I need that much when I stop them a bit now and then.

It’s good to check it out occasionally just to be sure I still need such a high dose. This experiment is telling me that maybe I can take a little bit less but not much. I need help to figure it out I think. I want to take less opiates for several reasons but it may not be possible for me. I may just have to live with it. Sigh….

But getting back to my story about the link between pain and mental health… In order to be OK with this kind of double whammy you really have to take good care of yourself. It’s so difficult to do when you know you need exercise, for instance, but you’re too tired to do it and you’re too depressed anyway, so why bother?

What a terrible attitude that can be. It’s not intentional it’s just the way it is. I have to work extra hard to do things that keep me limber and stretched out so I can feel looser when it gets so that I start to hurt. That requires a lot of exercise on my part and I don’t always do what I need to do. It’s not good.

So I try to stretch most every day and go for walks with my partner who also needs the exercise and it’s good we can do it together. We do the stretches that way too and work out on our weight machine in the garage when the weather allows us to. It’s been chilly here lately so it’s been hard to do that part of it.

Having both pain and a mental health condition requires you to always be on your best behavior. Even when you don’t feel like it you have to try. I know that sounds like a simple answer but it’s all we have. If we don’t take care of ourselves no one else will, and we live in pain and suffering and never gain our full potential. Pain holds us back as do our moods. When they conjoin it’s doubly hard.

Depression hurts all by itself they say, and I don’t know how much my pain is caused by that and how much is the back and body injuries that I have. Like I say it’s hard to tease them apart. Either one can precipitate a flare up – of depression or of pain. Either one can lead to the other in a loop effect that is always there. It feels like there’s no escape, and I guess there’s not. Triggers are everywhere.

But they say Living Well is the Best Revenge, and it’s true for suffering too. Living a good life and taking good care of yourself can go a long way towards alleviating both the pain and the depression when they take a hold of your life and turn it inside out.

It’s not the life I thought I’d be leading at this age but it’s what I’ve got and I’m so grateful for it. Now if I can just stay OK for a little while. I’d like to make it into the new year in one piece… 😉

Be as well as you can be,

Steve

Depression Abounds

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I’ve been reading a lot of posts on the Bipolar Blogroll this morning and it seems like a Lot of people are suffering right now with severe depression. Like the type where you just want to die or hide out from those in your life, or tell all your friends to go away and leave you alone. Bad stuff. It hurts to read all these posts because they’re so close to home for me right now.

I’ve been in a depression for weeks now I guess. It’s so hard to tell sometimes. I just feel bad and out of it. I wake up crying every day and not just for me, it’s for the world and all the suffering in it. I cry at the strangest things and at the most inopportune times. It’s gotten worse as I’ve gotten older. Too much pain and sorrow to have seen.

But I know I’m not alone in this. There are so many of us who suffer from this horrible disorder. Sometimes it feels like my whole being has been taken over by an alien life form and I don’t know who I am anymore. I used to be a happy person in my life, didn’t I? I think so. Or at least I could fake it well enough to get by.

But faking it is real hard right now. I try to write about it but I just get stuck and can’t say what I want to say. I’ve deleted my last two posts here because I just hated what I was writing so much. I wonder how many others do that, or do they just let it be and see what happens. I can’t risk that I guess.

I feel too vulnerable already. Like my world is falling apart. And the strange and awful thing is that my life is really pretty damn good. I have a lover and partner who loves me and a house to live in and food to eat and even have mental health care that’s pretty good. I have a lot of good things in my life, but I’m still suicidal. Why the Fuck do I feel this way?

Going up and down all the time gets so old. It’s so hard on you and takes away your sense of self and your ability to just feel OK. It’s a cruel disease and I’ve read that they’re now being able to image it on a MRI when someone is having a bipolar episode. Maybe it’ll be better if we can “Prove” we’re sick, but I dunno.

There’s so much stigma against mental illness. I’m pretty open about it to people who I feel safe with, but it’s a difficult call and I’ve been burned more than once by being honest. So I watch who I tell but I tell everyone I can. Does that make sense? See, I figure that only by telling our stories will we ever gain the respect of the world and let them see us as humans who are damaged and sick and need help instead of ridicule.

So I keep trying to stay OK and not kill myself. It’d be way too hard on my partner and my few friends. I’ve lost most of them over the years due to this disorder because it does have a chilling effect on relationships at times. Especially when they don’t see you as sick.

That’s why I wrote about this as an Invisible Illness. It’s not often that people see me as sick or ill in any way let alone in my head. I hide it really well and I function well enough to be able to pull it off. Hit in my weaker moments when I’m all alone and feeling bad about myself and none of that matters. All that counts is the way I feel at this exact moment.

My counselor tells me that I’m in a depression when I feel this way and that it’ll change. I know that. I guess that’s the one awareness that keeps me going. But I don’t believe it much when I feel this bad. It’s hard to stay positive tho that’s my usual attitude. But sometimes it’s just too hard as I’ve spent days being depressed every single day lately and it’s being way hard on me. I want to die so badly.

But I won’t do anything rash or kill myself. People care about me even if it’s not that many. I’d leave a big hole in my social circle if I wasted myself, so I won’t do it. I did try it once and failed, fortunately, but I could try again and I sort of made a pact with myself that I wouldn’t do it so this is all so much more anguish because I can never end it.

If I thought I’d stop it by dying I would, but I doubt it’d end the suffering , it’d just transfer it to someone else, and that’s not cool. Other people would be hurt and I can’t do that to them. They’ve cared too much for me to betray that confidence they have in me now.

I do love myself and I’m so grateful for all the good things in my life. But I sure wish the depression would give me a break. I want to stop my antipsychotics so I’ll get hypomanic but I know that’s a bad idea. I’ll just get irritable and angry if I do that, too manic. I would love to feel Good like I used to when I’d get hypomanic. I used to revel in it but these days it’s so rare and damaging it scares me. And it’s “just” hypomania not full blown stuff. It’s bad enough.

They say Bipolar II is “Bipolar Lite” sometimes because we don’t have full blown manias, tho I have had them but never got caught in one…. So I was diagnosed with BP II and it fits me cause I’m so depressed so much. I can’t imagine thinking this illness is anything like “Lite” tho. It’s so hard on me how can it be a light disease? It kills people damnit.  It’s not an easier way to be than BP I. It’s just different.

I have a lot of rapid cycling and mixed states, when I’m either going up and down all the time or I’m in both places at once. It’s not supposed to be possible with BP II but there it is. I do have mixed states a lot and they’re so dangerous. I have plenty of energy to kill myself and the desire too, so watching out is the way to proceed.

I just need to keep it up. With the pain and the depressions I have a lot to deal with. But I have a lot of good help and support too. Without it I’d be dead for sure. So I’m grateful and thankful for my life despite all the traumas and dramas. It’s a good life and it’s mine. What else do I need?

Struggling with the rest of you,

Steve