Opiates!!!

thumb_IMG_7395_1024

I got home from the University of Washington Pain Management Clinic a little while ago. I’d been sent there by my new doctor who wanted a review of my condition so she could treat me appropriately. It was an interesting experience. We went thru the usual tests of range of motion, gait analysis, mobility of limbs, needle pricks to see if I felt the sharpness (I did) and so forth. Nothing new from this testing and no new information about what was going on with me. But I did gain some important new knowledge.

I learned that the brilliant legislators in Washington State have decreed that no one shall be allowed more than 120 mgs. of opiates a day. Period. No discussion, no rebuttal, no recourse. This is a bit of a problem for me, you see, because for the last dozen years or more I’ve  been taking close to 300 mgs of Morphine as well as 15-20mgs of Dilaudid (Hydromorphone) a day. Imagine my surprise when they told me this. I was not shocked, because I know what the climate of the country is like these days around opiates. I was expecting something, but nothing this extreme. I mean they wanted to cut me back over 1/2 of what I’ve been taking for Years! Fuck!!!

Part of me wants to go down to Olympia and break the legs of every (probably Republican) legislator who voted for this draconian measure and leave them in pain forever while they beg for some relief. After all, that’s what I’ll be doing pretty soon – begging for relief – as soon as they drop me down to the 120 mgs. I’m now allowed. Sigh. I have what’s called Chronic Intractable Pain, so called because it’s constant, severe, disabling, and causes detectable changes in your heart rate, blood pressure, etc, and if it’s not treated it ends in death. Yep, a fun diagnosis for sure. I’m lovin’ it myself… I can function, but I’m always in pain and if I do much of anything it spikes so that I have to take some dilaudid for breakthrough pain. It helps a lot but it doesn’t make it go away completely.

I’d changed docs from the one I’d been seeing for 13 years because he stopped prescribing opiates. He never asked me to pee in a cup during that whole time because he trusted me not to mess with my meds, and I never have. Why would I? It’s Stupid! But the new doc at the UW clinic requires me to do that so that they can see if I’m honest. I am, and soon they’ll learn that, if they can keep treating me that is. I dunno if they will or not. Most doctors won’t touch me with the proverbial 10 foot pole. I sure hope the UW helps me or else I’ll be so sick I’ll be in the hospital for withdrawal symptoms. I mean 300 mgs a day is a Lot of morphine, let alone the dilaudid.

I understand that people are freaked out by the rising epidemic of opiate deaths due to mis-used pain medication. I feel badly about this. After all, addiction is a disease, and maybe they can’t help themselves. But a part of me is furious at them and at the politicians who seek to make headlines with new laws to keep people like me from getting the medicine they need to live a good life. Before I got the opiates I was a mess – I fit the portrait of Chronic Intractable Pain I described above. I spent a lot of time resting and I didn’t do a lot because I hurt too much. I still hurt, even with the meds. What will I do without my usual dose? I’m freaking out here!

No, I’m not – yet. I’m trying to stay calm. After all it’s only been a few months that I’ve felt relatively stable with my Bipolar Disorder. I’m not out of the woods yet and I still get suicidal and all, but I’m doing better than I have in ages. So imagine what this will do to my mood. Pain and mood are inextricably intertwined and if I hurt I often get depressed, and vice versa. It’s a vicious circle and I’m trapped in it for life. I’m not playing victim here – it’s just my reality. I do my best to live with it and I do pretty well, now – but what about 6 months from now? Where will I be then?

I hate that because some people overdose on opiates and die that the country is overreacting so severely as to limit what pain patients truly need to be OK. Obviously none of these politicians lives with severe chronic pain. If they did maybe they’d have some compassion for us. I’m angry at them and at the ones who abuse the opiates I need for survival, thus keeping them from me. The old rotten apple syndrome for sure. I never get”high” from these meds. I’m just in less pain is all. So for them to take my medicine away because some people do get high is totally unjust and wrong. Just because a few people screw it up for the rest of us is no excuse for this travesty. I’ll be writing my  congressperson soon, you can bet on it. Not that it’ll  do any good, but maybe I’ll feel like I’m doing something to change things that are so wrong. It’s an overwhelming feeling to be in this position.

I’m 65 now, and I’ve been living with chronic pain since I was 25. That’s a long time to live in pain. I hate it. But I have a good life because of the opiates that keep me functional and not in so much pain. I can live my life as I choose to. Maybe I don’t deserve to, I dunno. But that’s my depression talking. I do deserve to be OK and not suffer so much. We All deserve that. But the politicians who want to control our every breath don’t give a shit, and they make the laws so I have obey them. I’ll go along, because I HAVE NO CHOICE!! Such is life, eh?

Pissed off royally,

Steve

Advertisements

I Was A Different Person Then…

thumb_photo022_1024

I used to think of myself as a competent person. I started my first business in my early 20’s and created several more over the years, ending with a non-profit Healing Arts Center I founded in 1991. I thought I’d found my place in the world and would be working at it for the rest of my life. But it didn’t work out that way. I finally got “caught out” and had the worst breakdown in my life at 44. I was diagnosed with Bipolar and was forced to take a hard look at my life. What I found was that I hadn’t really  been as competent all my life as I’d thought. I was just Hypo/manic.

I don’t mean to say I never accomplished anything good. I did some good community service work and created some beautiful landscapes and gardens. But it was my headspace that messed me up. I’d thought I was good at what I did, and I guess I sorta was. I got by anyway, mostly by being a good bullshitter. I was good at projecting competence, even when it wasn’t real, as so often happened. People accepted me for who I said I was and who I pretended to be. I was good at it.

Now I look back at the work I did and see how much of it was fueled by mania or sometimes just hypomania. I doubt I ever had any real competence at all, tho I knew enough to get by, as I said. I was a con man, tho I never would have said I was or thought it at all. I always thought I was doing good work and helping to make the world a better place. And I did. But the cost was enormous. And not just to me. I cringe when I think of some of the gardens I planted that weren’t as good as they should have been. People live with my mistakes even now. It drives me nuts.

I know that hiding ourselves is a big part of being Bipolar. (Having bipolar?? – whatever…) A lot of us hide who we really are because we somehow know we’re not quite “right”, even tho we don’t know what’s wrong at the time. I always thought I was just a high energy, hyper person who was very creative and able to do amazing things that other people couldn’t do. I was a bright sparkly light in the darkness at times and I relished it so much. But there was a darker energy lurking just under the surface.

It didn’t stop me tho. I did a lot of good stuff and created some amazing entities. I did so much that was wonderful and I thought I was a pretty neat guy for doing it. I transformed the places I worked at. And the ones I started myself were unique and treasured. I got lots of compliments and good strokes on what a good role model I was for striking out on my own and creating good things for my community. It made me high I’ll admit. Too high sometimes… And we know where that can go don’t we?? Whoa!

I’ve always been a rapid cycler, tho I didn’t know that’s what it was of course. I’d do a big job and then I’d crash and burn for awhile and then I’d get it back together and try again. And the damn same thing again, and again, and again. What a mess! Those down times were awful, often going clear down to suicidal ideation and one time going even farther when I tried to off myself. A bit extreme but it fit my life at the time. Luckily I got caught – but not diagnosed correctly of course – not for years…

I have a diagnosis now – several of them fact. BP I, PTSD, Dysthymia, Chronic Intractable Pain, and more I won’t go into. It’s been 20 plus years since I got that initial Dx of BP and in that time I’ve been mostly a mess so that I really couldn’t function too well. I lived in public housing for over a decade until I met Louie and moved into his home. I’m lucky now but I wasn’t always so lucky. I’ve had to accept that who I am now is Not who I used to be. I just can’t pull it off anymore, and maybe that’s a good thing.

I think I’m more real now than I’ve ever been. More true to who I really am. But those hypo/manias are a thing of the past for the most part. I still get too high/angry sometimes and have to down myself with drugs, but mostly I’m more depressed than manic and stay at a low level of energy and interaction. I’m doing some volunteer work for the city right now and I try to keep something of a social life, tho I lost most of my friends when I had the breakdown and afterwards. But that’s mostly OK. I miss having more friends, but the ones I have are good ones.

I’m still a decent guy I think. I try to live a good life and not mess the world up too much. In fact I try to help it when I can. I garden a lot and teach people about trees and the like. But I’m so much more cautious now. I’m so scared that I’ll screw up again like I did so often in the past. I’m afraid most of the time in fact. That old Impending Doom thing so many of us have. It’s so debilitating at times I can’t even function. I walk carefully through the world these days.

It really does make life more difficult and I look forward to the day I heal from this attitude I have now that nothing I ever did was really real or that I was real myself. I know that can’t be true but it sure feels like it. Those damn feelings again. Not rational at all, but so overwhelming that you can’t ignore them and it feels like they’re all there is to life. I get caught in this so much. I’m afraid to even act much of the time for fear I’ll blow it. I’m not like I used to be at all really, when I had so much courage and self confidence to do such incredible things. I miss that.

That guy is gone and good riddance. He was a braggart and a poseur and a con artist and I’m none of those things in my heart. I’m not who I used to be tho I still have a core of Self that will always be inviolate and that will keep me OK forever, I hope. It’s real now, not some false mania or hyper action that I jump into without thinking of the consequences. I may still do that and I sure still make mistakes, but I feel like they’re really my own now and not some unreal thing I manufactured to get by and get ahead without knowing the results completely. I understand more now.

Yes, I was a different person then. A good one but not always solid and real and true to myself. I was so confident and I miss that confidence a lot. But was it real confidence or just mental illness? I guess it was a little of both, but I think it was tilted toward the illness. Now that I know what I’m dealing with I can do it better. I can’t always control my life, but I try hard and I try to be as real as possible. It seems to be working to some extent and I’m in better shape than I have been in a long time now. So I’m glad I’m different, but I miss the highs and the bravado and most of all the self confidence.

I’ll just have to get used to it, eh?

Steve

Is it Mania or Just Anger?

I’ve been struggling with some emotions that are too raw and close to the surface lately and I’m worried about my reactions to things. I seem to be on a hair thin trigger these days and my anger levels are right below the surface. I know that the current political landscape, in particular the race for president, is affecting me greatly. But it’s more that that, and I wonder whats going on? It seems worse since I got on this current regimen of Wellbutrin and I wonder if this is one of the subtle hints of fracturing that I’ve experienced before on it, but in more obvious degrees. It’s confusing.

I read an interesting article on mania and anger the other day. A leading psychiatrist here in Seattle said that it was wise to beware of labeling anger as mania in Bipolar disorder because it was more often caused by substance abuse. It’s an interesting theory. I’ve not been diagnosed with substance abuse, but I’ve smoked pot since I was in high school – some 50 years now- so obviously some would say that’s my issue. But I’ve always used it carefully and now it’s strictly medical and I smoke it sparingly. My psychiatrist doesn’t mind and my counselor and ND both suggested I use it. So I don’t put much stock into this notion myself. Denial? Maybe, but I think not…

I believe that it’s more than just that. It’s dreadfully close to wrecking me. It Feels like mania, not just anger. And it’s too sharp and too intense and takes me over so much that even little bits of angst can throw me into a fit of rage where I seriously want to hurt someone or myself or destroy the world. Typical, I guess, but it’s no fun at all. Not like the bright sparkly hypo-manias I’ve had so often in life that inspire me to do good work in the world. This is a destructive mania and I’m afraid of it.

I haven’t had a lot of florid manias in my life. Mostly they’ve been long term experiences where I entered into lands uncharted and tried new things that haven’t been done before. Like creating an innovative non-profit healing arts center with my credit cards, working myself to the bone and finally ending up in bankruptcy and disability. I had a Vision you see but I couldn’t see the whole picture and I ended up in disgrace and struggling with it’s futility. It hurt me badly. It was a 4 year manic episode. And no one even noticed, because I hadn’t been diagnosed yet.

Most of my manias haven’t been that obvious to other people. But they have still been filled with lots of anger and rage, thru my whole life. I can remember times when I was a kid that I would explode in rages that terrified my little brother and caused my parents to label me with ADD as an adult. They told me my anger was palpable and horrible when I was young and had those fits of rage. Sounds like the beginnings of Manic Depression to me, eh? I was a horrible little child I think, tho no one in my family is alive to tell me how bad it really was. I can’t remember much about it but I know I wasn’t a bad kid per se, just angry and unpredictable.

So back to my proposal here. Given my experiences in my life I can’t say what is causing me to be so angry these days. I know I can’t discount the situation in the world. It really does affect me. I’m super empathic and I feel the suffering of others deeply. It hurts me. It also makes me mad. This is a problem and I haven’t figured out what to do about it yet. I hope I can keep it under control but I dunno. I haven’t broken anything or slit my wrists, which I’ve wanted to do many times. I haven’t exploded at Louie or any of my friends. And I actually haven’t hurt myself, except with my thinking, which is bad enough.

I try to calm myself down when I feel this anger growing but it’s very hard to do. I often have to resort to drugs and take some Klonopin, or when it’s really bad, some Abilify, that will knock me on my ass and put me totally out of it. At least it’s better than the rage but it wastes me and I don’t  really like that. But it’s better than the anger for sure. If I don’t know where it comes from and what to do to stop it I can at least alleviate it some and that’s good for me. I also use CBT to tell myself to Stop It! But that doesn’t always work out too well. I’m often too far gone, unless I catch it early. Sometime I can, but not always.

I think this is a bit of a manic response to situations that I can’t control and that cause me distress to the point where I crack up and lose it. Or is it just anger? I’m still confused. It’s been there so long, but then maybe I’m just an angry person. I don’t think so tho. No one I know would ever call me that. But I would. I feel it so much. Sometimes I know that my anger is invigorating and it helps me come out of my depressions really well. But this stuff is out of bounds and isn’t connected to reality. It’s troubling. I’m at a loss as to what to do besides trying to just live with it and try my best to deal with it safely for myself and others. So far, so good. Maybe it doesn’t matter what it is, maybe what counts is dealing with it well. Sounds good to me…

How’s Your anger level?

Steve

Robin Williams – Too Sad

MORK AND MINDY - 1970s - 1980s

I’m very sad again today. Yesterday I heard that Robin Williams had committed suicide. I’m having a hard time with this. He was my age and according to many observations he suffered from Bipolar Disorder like me, tho apparently he himself never said as much from what I’ve read. But he sure acted like it didn’t he? I was always amazed at his frenetic energy and classic manic behavior in his routines and films. He was a comic and dramatic genius as an actor and a kind and generous soul as a human being. I can’t even begin to say how much he gave to me and others throughout his life of such sorrow and joy. He did what so many of us do with this illness – he hid his struggles well, tho he was also very open about them, but he couldn’t hide it in the end. I already miss him so much.

This event is what is called a Trigger for many of us. It’s a situation that flips our emotions into a negative state that affects our ability to cope and stay OK. It pushes us towards whatever form of mental illness we carry with us and adds to our difficulties of staying well. Anytime I hear of someone who dies by their own hand due to the “push” of Bipolar it triggers me and affects me deeply, and this case is no different. In fact it’s a really hard one because of how he made me feel and how much I identified with him. Not that I’m a comic genius or anything. Far from it. But I related so well to his energy and compassion for the world. He did so much to make it a better place just by being himself. Like so many of us with Bipolar he used the impetus of the illness to fuel his comedy and dramatic turns on screen and TV. Like so many of us he also didn’t hide that energy from us, he reveled in it and I loved him for that.

Tho he never said he had Bipolar Disorder there are many who would look at his life and say it was obvious to us. I’m one of them I guess. Like his most famous mentor Johnathan Winters, who also suffered from Bipolar, he was a lightning rod for that incredible energy that made his work so real and so human. He embodied so many great character traits in his work and life and made the world so much better thru his presence. It’s being hard to write this as I keep crying, which I keep doing, and I can’t see thru the tears. It’s been like this ever since I heard about it. If I weren’t doing as well as I am right now myself this would push me into a depressive syndrome quite easily. Triggers do that. Just like what happened when my cousin’s wife died of Bipolar back in February. It really got me bad and I was so depressed for weeks after her death, tho she didn’t kill herself it turns out but mistakenly took the wrong meds and passed out and fell into a swimming pool and drowned. I feel the same way with hearing of Robin’s death. It’s triggering some bad emotions in me and I feel so sad and bereft.

You see I look at Robin’s life and how he was so very successful and how much money he had and the fame and acclaim that filled his life. And I wonder how if he lived with all that and more in his life and still couldn’t find a way to get thru it without killing himself, how will I ever do it myself? It scares the shit out of me. I look at him and see how easily it could be me there on the floor. I don’t have the resources he did, but I have good support, and tho he must have had it too, it wasn’t enough in the end. Will my support be enough for me? I wonder… Especially the fact that he and I are the same age and come from similar cultural backgrounds of coming up in the crazy 60’s and all affects me. It just feels too close to me and I fear for my well being. But as I said I’m doing well right now and am not prone to such depression at the moment so I think I’ll be OK. But it’s challenging and hard and I hate it. How will I be tomorrow? I really don’t know. Still sad I expect. Still filled with these difficult emotions.

I’m not going to write about all the films he was in or the things he did to help the world. You all know of most of those things and there are lots of articles out there now praising him and mourning his death. This is just a very personal response from me about his decision to end his life. I don’t blame him at all tho I’m so sorry he chose this path. But I’ve come too close to choosing it myself, in fact I have in the past and I still get close to it too often so it’s hard. What I have for him is compassion, and I’m tying to have it for myself too right now. I just wanted to say a few things about him and how he affected me and how triggers can come at us from out of nowhere at any moment and impair our ability to cope and live our lives. I hope this hasn’t triggered any of you because of my writing but if it has I hope you get thru it as I’m trying to do. Being grateful for Robin’s work in the world and his personality and his ways of being so real about his struggles is important for us to do.  He was a good model for us in how to live an amazing life with Bipolar dogging your steps, even tho he ended his own life in the end. I understand him I think. That’s why it’s so hard. I get it. I suspect many of you do too and I hope you do OK with this tragedy. I hope I do too. I guess only time will tell.

Missing his Manic Presence,

Steve

Note: photo as Mork by Everett Collection/REX

Bored With Bipolar

BKGRN021

 

You’d think that after almost 19 years of being diagnosed with Bipolar Disorder and 63 years of living with it, I’d have come to terms with it by now. And frankly I have, many times. But right now, and for the last few months, I’ve been at odds with my illness and it’s been anything but acceptance that I’m feeling. I’m feeling ripped apart by this disease that has so impaired my life that I have spent hours and days and weeks feeling like I should just kill myself. That I should just end it all and be done with it.

This where it gets Boring. I feel so totally boring in my depression. I’m not a fun guy these days. I don’t feel like laughing at funny things or enjoying the accomplishments I’ve had in my life. I feel like this is too much for me to handle and I just can’t keep doing it. I’ve talked with my psychiatrist and counselor about going into the hospital just for a change of venue for awhile to see if that would kick start me out of this state I’m in now. The Psych. even suggested things like ECT and Vagus Nerve stimulation, all of which scare the hell out of me.

But I need to do something. We also talked about anti-depressants. It’s been a few years since I tried one of them and maybe it’s time to try another one, tho so far I’ve failed on all of them and many have made me more ill than I was before I took them. So I don’t have much hope that they’ll fix things any but I have to keep trying. I’m working so hard on trying to change my attitude and perspective and focus on gratefulness and the abundance in my life. I have a good life and I know it, but it doesn’t seem to make any difference now. I just wanna be done with it all. This is so boring and is why I live a life that is just impossible. I so miss my hypomanias when I felt great and like I could take on the world. Sometimes I went too far with them but I’d take that any day over these crushing depressions I live with these days. A little up time would be nice…

But those times have ended pretty much due to taking an anti-psychotic for several years now. The Abilify cuts down on my hypomanias and keeps me on the low end of the spectrum. I don’t get to experience those times of intense creativity and joy and brilliance that accompany hypomanias. All I get to live with is the depression and how it eats away at my soul. I feel like I’m dying and that I’ve gotten into such a deep hole that I can’t even discern any way out of it. I wrote awhile ago about being stuck and that’s still how I feel.

I don’t have anything interesting to say here, which is why I titled it as I did. I’ll admit that being in touch with a depressed person is a boring thing to have to do. We’re just no fun and we’re a drag to be with. We had company over last night and it was all I could do to pretend that I was alright and could just seem to be OK even tho I’m not sure I was. I so wish I had a space in my life where it’s just OK to be depressed and alone and not impact others with my situation. But I’m in a relationship and that means I have to try to be OK for my partner at least as often as I can just to be fair. He has to put up with so much. I don’t understand why he bothers. I don’t think I’m worth it at all anymore.

I used to have a decent opinion of myself and felt like I had a handle on this Bipolar Disease. But I don’t feel that well at all anymore. If feels like I’ve got so much going on that it will be impossible to ever regain it. I feel so useless and like I have no reason to live anymore. I’m in deep despair and disillusionment. If it doesn’t break soon I really don’t know what I’ll do. I can’t kill myself because it just wouldn’t be fair to Louie and my few friends to do that to them. I do know better and that it’s a permanent solution to a temporary problem. But I don’t really care. I’m too far gone. I had a good friend tell me that any one who tried to commit suicide is just a coward and it really felt bad since I’ve tried to kill myself before many years ago and have never felt bad about that. But now I do. I feel like other people will judge me for it and wouldn’t understand why I did it if I did. It’s all boring tho, isn’t it?

I don’t have any morsels of wisdom to share today. I need help badly and I don’t know where to get it. I’ve slipped so much in my self esteem and self perception that it feels like I’m a totally different person than I used to be. I saw my MD the other day and when I told him I was stuck in depression and that I was stuck in feeling pain and stuck in the knowledge that I’d be in this state for the rest of my life that he just shut down on me and it’s like he didn’t even care anymore. This may be my perspective and he’s fine with me but I dunno. I think he, like me, was bored with me being still upset that I have to live with taking all these damn drugs for the rest of my life just to stay alive. Not to thrive but just to be alive. It hardly seems worth it. It doesn’t in fact.

Anyway I guess I should stop now. I know some people have been worried about me in that I haven’t posted here in such a long time, and I doubt that this post will ease their minds, but at least now the truth is out there still and the angst I feel is clear. At least it’s the true experience of someone who has Bipolar Disorder and can’t control it at all at the moment. Oh I can fake it pretty well for an hour or two but it’s hard to be upbeat for long. I just wanna hide out and not see anyone at all or interact with the world at all. And I have people coming to visit me soon and I don’t know what I’m going to do. I definitely can’t be present with them for too long but I’ll try.

So enough whining and complaining and pissing and moaning. I told you at the start it’d be boring and it sure is isn’t it? I long so much for a change and it feels like I just can’t pull it off by myself and the help I have isn’t doing it. I’m open for something new to try and see if it’ll work. So far nothing is effective and that makes me feel despondent and discouraged. Maybe someday they’ll find a cure for this illness, but until then I’ll keep trying to stop being so boring and be more positive. But I have no faith that I can do it. I guess we’ll just have to wait and see, eh?

Wishing you an interesting life,

Steve

Stuck!

Picture 158

I have a good life. I have a wonderful partner who loves me to death. I have a good home to live in and I’ve been able to improve it and add to its beauty, especially thru my love of gardening and what I’ve done there. But I’ve also added to the inside of the house and it feels more like mine instead of one I just moved into 4 years ago. I have good food to eat and a nice car and clothes and all I need to survive and be happy. But I’m not happy, and it’s driving me mad.

Or maybe I’m already there. I can’t seem to stop my brain from telling me that I’m a worthless piece of crap and I should just kill myself to make the world a safer place from idiots like me. It’s nonsense I know and I’m not a bad person. But this Bipolar Disorder really has taken hold of me right now and it won’t let me go no matter what I try to do.

I’ve been diagnosed with this dreadful illness for almost 18 years now and sometimes I really think I’m getting much better. I guess I am in many ways. My counselor and psychiatrist both think I’m doing well and treat me like I’m into recovery and on my way to feeling better. But it’s just not true. I’m still a mess most every day lately and it’s getting very challenging to live in my psyche.

I’m still in the Underworld despite the fact that I usually seem to come out of it around the Spring Equinox. I did some as I started to see the plants begin to bloom and grow. That helps me a lot to see Life arsing again and fulfilling it’s promise of beauty and continuation of existence. It’s so obvious to me that Life will find a way to continue and things happen as they do without our input or actions.

I have so much going for me I can’t understand why I’m so messed up and so full of suicidal ideation that I spend time every single day lately thinking about how to kill myself. I won’t of course. I couldn’t do that to Louie and my friends and family. I know this but I don’t know what to do. I’ve tried so many of my tricks to get my mind to shift out of this mess I’m in but I’m not having much luck. I’ve written a lot here on how I use certain ways of thinking to change my thoughts but right now it’s all bunk to me. Nothing is working.

You’d think I’d be on anti-depressants or something but I can’t take them because they make me crazier than I already am and have put me into the hospital more than once when I’ve had a bad reaction to them. They hurt me and I long for a pill or something that will change my negative self image to one that is more in line with reality and lets me enjoy my life again.

I know it’s terribly hard on Louie to see me go thru this. We talk about it often and he helps me so much just by listening to me and letting me know he cares. He saves my life more often than he knows. I’m so lucky to have him in my life and without him I’d probably give in and just off myself. I can’t seem to find my Joy button anymore and it hurts so much. Depression is a real physical disease and it Hurts to be depressed in your body as well as your mind. I’m already in pain from injuries I’ve sustained in my life and my dose of pain killers would kill most people.

So when you add in the depression it adds itself to the pain of my physical body it becomes an overload and I can’t seem to maintain. I fake it a lot. I think most people think of me as a positive person trying to make the best of a bad situation and that’s probably true. But it feels so phoney and fake to me to always have to pretend to be OK when I’m really not. It’s still too scary for me to come out about my Manic Depression in many venues and so I suffer in silence as so many of us do.

I don’t tell my neighbors, usually, what’s going on or my friends even. I don’t wanna bother them and have them turn away from me like so many have in the past because of this illness. It’s caused me to leave so many situations that just caused me distress and fear and led me to worse states so that I’m left with only a few friends now and I’m isolated too much of the time. I know I need to get out more but I feel too lousy and can’t seem to break out of the cycle.

I know this is a really lousy post and I apologize. This has been building up in me for so long I just had to vent a bit and explain how it feels for someone who is as together as I am to go thru such terrible disillusion. I can’t recognize myself anymore. I don’t know who I am or why I’m here and I’ve usually known that. I’ve had visions of my life since I was in high school and I’ve followed them, often to glory but often to falling apart.

In the past 18 years I’ve gone thru so many changes. From the initial recognition of the illness to learning the tricks of the trade in how to keep yourself well to falling apart again and again to being OK again now and then. But it’s been awhile and I’m feeling the loss of my usual bright self and energetic persona. I just feel like a wet lump of dough or noodles overcooked and it’s like moving thru oil or honey just to walk some days. It’s very physical as well as mental.

I’m hoping that things will shift soon and I’m still trying to be OK. I talk to my counselor and psych. and to Louie and other friends a bit but not too much. Maybe it’s time to go back to the Bipolar Support group I used to go to. I wonder. Sometimes others with the same illness can be good support for one another and it’s helped me in the past. I need help now. Badly. I really don’t want to implode and end my life. It’d be so stupid and I know it always changes, but it’s so hard to wait it out and feel so powerless about it all.

My diagnosis is that of Bipolar Disorder with rapid cycling and mixed states, which means I cycle back and forth from high to low too often and often will be in both places at once. It’s very confusing when I can look at my self and see how great it is and then in my inner experience it’s so terrible. It’s truly cognitive dissonance. I can’t seem to hold onto my brain and keep it running on the smooth track of self love but instead find myself on the hate train to hell. I’m so tired of it.

Is this going to be the way it is for the rest of my life or will they someday find a cure for this horrible illness that has so wrecked my lfe and made me into a different person than I used to be? I don’t like who I am right now at all… I have hope but not much. The same goes for the physical pain I live with. Together they overwhelm me too often, like today when I hurt so bad I’m at a 7 on a 10 point scale and it feels like it. I’ve had to take extra pain meds already and it’s only 11:30 in the morning.

I could use more pain killers it seems. But with the way things are going with the pain medication situation it’s so tricky just to get what I do. I can’t imagine what I’d be like if I lost the morphine. I wouldn’t be able to even function. I’d be in bed and in pain all the time and would eventually give in to it and just give up I suspect. Add in my occasional migraine and it’s a total picture of pain. It’s just too much.

OK I’ve talked enough here. I’m sorry this isn’t a more positive post. I am trying to get better. I really am.  But it seems so impossible that I feel the way I do when I have such a good life and it feels so unfair to me. Not just to me but to Louie and my other friends who have to deal with my moods and pain all the time. It’s hard on them and I’m grateful to them for staying with me and being my friends. I couldn’t do it without them.

I hope that my honesty and lack of inhibitions in talking about this will help others who suffer from this same illness feel more comfortable talking about it themselves. It’s OK, and even necessary, to air our hard stories about how difficult this illness is. I’m a big fan of education and if even one person reads this and understands more of what it’s like for us it’ll be fine with me. It’s Real and we’re Not faking it, despite the stigma we face… This is Life for way too many of us…

Wishing you a good day today,

Steve

I’m an Angel!?

award-angel_edited-1

I hardly know where to begin with this new award. It’s hard for me to envision myself as an Angel. I’m so many people you see. I go back and forth from being such a nice guy to being a jerk and from being happy and bright to sad and depressed so often with my Bipolar disorder. It’s difficult to see myself as an angel in anyone’s eyes, but I am in Dr Rex’s sight and it brings tears to my eyes. I’m so grateful for this look at myself that is so hard to take in and yet feels so good to receive. I’ve talked a lot about Dr. Rex on my blogs and I still find new things to say. I encourage you to go to her blog at: http://hrexach.wordpress.com/2014/04/03/a-new-award-the-angel-award/ and read what she has to say about this award.

It’s a testament to her character that she has been given this award and I can surely see why she has it. She does such a good job of “Being There” for so many of us. She is an Angel in the best sense of the word as I understand it. She loves her readers and her work and is passionate about how she presents it all to the world. She’s very kind and loving and truly cares about the world and its inhabitants. She is an Angel for sure! I’m very grateful to her for giving me this award. It’s a relatively simple one, with no particular rules, so I’ll just follow her excellent lead and say that if you’re reading this blog you’re nominated for this award by me. It means that you care enough about what I have to say to read my work and that makes you an angel in my eyes.

I’m so grateful for all the wonderful readers I have here on Naked Nerves even tho I know that it’s probably challenging for some folks to read some of the topics I write about. I try my best to be real and write about the things that affect my life and those of others who have Invisible Illnesses and how we cope in the world. It’s a hard row to hoe but it’s worth it to receive this kind of wonderful feedback from Dr. Rex. I’ll try my best to keep being an angel in the ways I’m able to and to take in the award and make it feel real to myself.

You’re just witnessing how hard it is for some of us to accept compliments when we’re not feeling our best or worrying that we’re fakes and phoneys. I feel that a lot, so getting this kind of feedback is important to me and it’s important that I “Get It” and rely on someone else’s vision of me instead of just my own. So in that vein I thank you again Dr Rex, for your kindness and vision in granting me this award. I will do my best to live up to what it can mean. Thank you to everyone who reads this and comes to visit my site as well. You’re all Angels and without you all I wouldn’t even bother to be here. You’re the reason for me to blog, and I value you all immensely. Together we build a better world, one blog at a time…

Keeping the Faith,

Steve

Bipolar Takes Another Life

CLOUD050

I’m totally devastated right now. I just got a call from my favorite cousin telling me that his wife had just taken her own life this morning. She was 67 and had suffered with Bipolar Disorder for many many years and tried to kill herself several times before. Always they were able to save her before, but not this time.

I couldn’t stop the tears as he described the circumstances of finding her face down in their swimming pool when he got up today. He’s been in very bad shape himself from the weight of caring for her for all these years and getting sicker himself as it went along. He couldn’t talk much but he knew how much I loved her and how it would affect me so he called me.

This is so sad to me I can barely write about it but I feel it might help me if I do so I’m going to. I loved this woman so much. She was so funny and articulate and bright. She was the best school administrator in her district for many years before she retired because of the bipolar disorder. She was a dynamo and a jokester par excellence. She was the light of his world and a good friend to me too.

We were born on the exact same day only she was 4 years older than I am. 11/11 for us both. We used to spend a lot of time together when I lived in CA but I haven’t seen them as much since then. They were here for a short visit a couple three years ago but she got sick when they were here and had to cancel the trip. We saw them two years ago when we went to CA to see relatives of mine.

I was shocked to see how she had deteriorated even then. She always had a hard time figuring out which meds were the right ones for her to take. It’s a cruel irony to learn that the antipsychotic that has pretty much saved me from mania was the one that eventually killed her. It scares me so much. Not just for the drug but for what I might do to myself someday.

See I spend a lot of time wishing I was dead. I wish I didn’t have to say that but it’s just true. I have suicidal ideation frequently and it makes life hard and difficult. I Know I can’t kill myself because of what it would do to my partner Louie and to my remaining family and friends. I’ve decided not to do it ever. But I don’t trust my mind and so I’m scared.

This could so easily be me we’re talking about, or maybe it could be you too if you suffer from depression or Bipolar disorder. It’s a cruel disease and we tend to forget that 15% or more of people with it end up killing themselves. It’s a life threatening illness tho it’s still considered a stigma to talk about it and try to heal those of us who have it. I hate it right now with a vengeance…

It could too easily be Louie making calls to my family to tell them that I couldn’t stand the pain any longer, as my cousin couldn’t do, and that I’ve ended it. My own experience when I did try to kill myself was instructive to me. It showed me that when you reach the end of your resources to endure the pain you believe you have no choice but to end your life. That’s what happened to me. I couldn’t bear it any longer.

I’m  lucky I did pills then and the docs pumped my stomach and gave saline and got rid of the drugs. I thought I’d been clever, even calling the Poison control center in my town so to make sure that the pills I took would  kill me.( I said it was about my roommate…. sick..) But it didn’t work and I’m so glad at this point. I didn’t think of others at all  but I don’t blame myself. I was doing my best. It just wasn’t good enough.

So it must have been for her. She reached the point where she’d tried to kill herself several times before this and was in so much distress and confusion from the wrong antipsychotic that she wasn’t thinking right anymore. I haven’t been able to talk to her in some time because she couldn’t handle the phone, so I don’t know where she was at at the end, tho I can guess. I know it too well myself.

I don’t know what else to say. I’m drained of energy and feel like a wet dish rag from the crying and sadness I feel. It’s hard to imagine I’ll never see her again. She always made me laugh and was one of the closest people in my family to me even tho we weren’t really related except for marriage. She was Family to me and my family is one short today. We’ll all miss her dearly and mourn her forever.

Grieving for the loss of a dear friend,

Steve

Inside a Hypo-Manic Episode

SCSNT004

“No I’m not just upset. I’m way beyond that. I’m truly enraged. I can’t stop my heart from racing and my pulse is pounding. I feel like I want to kill someone, anyone, but especially myself. I want to blow the whole world away. I feel way too much energy in me right now and I can’t sit still.

My brain is boiling and my eyes burn. My head feels like it’s about to explode and the energetic spasms in my body are thru the roof. I have to do something really quickly to stop this or I’ll do something I’ll regret later I’m sure and I don’t want to do that. But I feel so lost and disoriented and out of control. I Hate this shit.”

That was me yesterday when things were really bad. I couldn’t even write about it because I was too irrational. I wasn’t making any sense and I knew it and I had to take action, as I describe below, to keep myself from doing harm to myself or others, or just plain trash my belongings. And I still feel it today too, damnit. Why do I feel this way? It really doesn’t matter. What matters to me is How I feel.

If there are ever any times I doubt the manic part of my bipolar diagnosis it’s when I stay depressed for so long I think that part of me has gone away. It takes times like this to realign myself with my full nature to recognize that the manic part of me is still alive and well, unfortunately.

I usually stay well below the midline with my moods. I’m usually depressed or on the verge of it. It’s my default state of being. But now and then something happens to me that makes me so angry, irritable and enraged that I explode and lose it entirely. That’s when I recognize the mania that I embody as well as the depression.

Now is when I feel the Manic-depressive aspects of this damn illness. I can stop these feelings better than I can the depression because I have drugs to help me with mania and I don’t with depression. Still, I got so angry and enraged yesterday that I thought I was going to do something really bad to myself or something else. I really felt like destroying everything.

So I took a dose of my anti-psychotic and a dose of an anti-anxiety medicine and in time they calmed me down to the point of being almost comatose. I could barely move after awhile and had to lie down on the couch to decompress and just rest I was so wiped out from the drugs. But that’s a better place to be than destruction.

Technically I’m only supposed to feel Hypo-mania, not True mania, because I was originally diagnosed as Bipolar II, which doesn’t include getting truly manic, just a bit below that, which is called Hypo-mania. That’s mostly true for me in my life. But hypo-mania is just as dangerous as mania if you don’t control it. It can still kill you or make you do things you’d rather not do.

It may not last too long but it lasts long enough to totally degrade my thinking and make my life a living hell. And it’s not so easy on my partner either. He tries to help me but I get so shut down that I refuse all offers of help or suggestions of assistance. I get totally locked up in myself and I can’t move or act constructively.

This is very different from depression. When I’m depressed I feel like I deserve to just die and that’s it. I feel hopeless, discouraged, in despair, and all the rest of the stories any of you who suffer from depression know all too well. But I can see how I’m being and ask for help and receive it. I can change my moods.

Mania is very different for me. I generally lose most of my self awareness. I was barely able to hold on long enough to take drugs yesterday and if I hadn’t done that I’d have been lost for sure. I can see how when I have true mania I totally lose myself in it and can’t begin to act even as well as I did yesterday. You can’t tell you’re messed up is the thing. You think you’re normal. But you’re not…

I’d love to have a handle on these extreme mood swings I have. I guess I do have many of them if I look back at my earlier posts and see that I’ve talked about how to change your moods and thoughts many times. But right now it’s all bullshit to me and none of it is real. I’m just a mess and I feel like I’ll always be one so why bother living.

Shit, I guess I’m starting to slip back into depression even as I write this. Wow. How can I go from being so high to so low in just a few minutes?!! This is called Rapid Cycling and it’s common for a small percentage of those of us who have Bipolar disorder. It’s when we flip from one state to the other several times in a year, or in my case, in a month, a week or a day even. It happens Fast.

I also suffer from having Mixed States where I’m both too high and too low at the same time. I guess that’s what’s going on now because I feel both in my system. It’s like my whole body is flooded with chemicals that make me feel weird and out of it. Slow and draggy but hyper and antsy all at once. It’s not the drugs, it’s the Manic-Depression at work in me. It’s bio-chemical after all so why shouldn’t’ I feel it that way?

So now I’m totally screwed. I feel too hyper to sit and rest and too depressed to do anything about it. A classic state of mind for a mixed state and one I’m all too familiar with. But the fact that I’m shifting does mean that sometime soon I’ll be back to myself and be able to change this mood of mine. I’ve learned that when I feel too powerless with it all I just have to wait it out, like a bad drug trip, and it’ll change in time.

I just hope that I make it thru that time and don’t do something really stupid in the interim. I can tell I’m still on the edge with it all. I’ve even thought of deleting this whole blog because I feel so isolated in it so often. Why do I bother I wonder? No one cares… sigh. Wait! This is depressive thinking I can tell and I have to stop it. Now!

It’s amazing to me how much writing out this stuff can help me. It may not be interesting to you but it’s Real and it’s a glimpse of what I go thru on a daily or weekly basis. I do this dance a lot and it’s a hard one for all of us who have this Disorder. If you have it I suspect you’ll recognize my journey here. If not maybe you’ll understand more about what it’s like to go thru it.

In any event I hope it’s useful to someone out there. It’s been good for me to talk about it and I’m grateful for this forum to speak the things that we live with and how we are in the world. I’m Bipolar and I accept that. It’s an OK way to be much of the time, even tho it’s hell other times. In fact sometimes it really rocks so remember that too. I’ll write about that part when I’m really OK sometime, maybe. We’ll see, eh?

No longer enraged but still Hypo-manic…

Steve

Blog for Mental Health 2014

bfmh14-copy-e1388959797718

I’ve been meaning to write a post about what Bipolar Disorder has meant for my life. And here comes a situation wherein I’m asked to do just that in order to qualify for putting this badge on my site and being a part of the 2014 Mental Health Blogroll. Here are the words of the Founder of this project:

“I pledge my commitment to the 2014 Blog for Mental Health Project. I will blog about mental health topics not only for myself but for others. By displaying this badge, I show my pride, dedication and acceptance for mental health. I use this to promote mental health education in the struggle to erase stigma.”

I couldn’t agree more. I think that everything I write in Naked Nerves is about mental health in one way or another. That’s my perspective at any rate. It all comes down to your mind and how you treat it and to your interactions with others and how you deal with them when you have a mental illness. And how you stay healthy with one and don’t fall off the edge of the earth as it’s so easy to do.

A bit about my story. I wasn’t diagnosed with Bipolar Disorder until I was 45 years old. That’s pretty old for this disorder and all I can say is that I just plain didn’t get caught any sooner because I lived below the radar by living such an alternative lifestyle my whole life. I used different paradigms for my ways of being. I was just a hyper guy with some mood swings. No big deal eh? Wrong!

I’ve always been an alternative type and I never even knew what Bipolar was until shortly before I was diagnosed with it. But ignorance is no excuse and it’ll get you anyway. My mom gave me a book on depression and in it were stories of folks with Manic Depression. I recognized myself much better in those stories, so I went to a psychiatrist and said I think I’m bipolar. Am I? And he said, You Bet You Are!!!

At the time I was running a non profit educational center I’d started back in 1990 and I worked pretty hard at it. In fact I totally burned myself out doing it. I was grandiose in my Vision of what I’d created and I worked my ass off to make it happen. I overdid it and didn’t have enough help and it nearly killed me. Pretty classic I guess, for this disorder anyway…

I reached the point where I had such a severe mixed state episode that I lost it completely and had a mental/physical/spiritual/emotional breakdown that changed my life forever. I haven’t worked since and doubt I ever will since I’m now 63 years old and still too unstable for the job market. This cycle has happened to me Many times in my work life and it’s affected my career thru that my entire life.

Even tho I was 45 when I was diagnosed with BP, I was treated for depression when I was 29 and tried to kill myself in the process of coming out and dealing with identity issues and just felt too crazy and horrible about myself to live. Fortunately I survived that attempt and I’ve never tried it again, tho I want to often still.

But I have responsibilities to people and I can’t leave my lover, friends and family. I have to stay alive now, but it’s hard sometimes. I don’t care about myself then and wish I could just die, but it’s the love of others and my caring for them that keeps me here. I”m so lucky to have people to love and to love me. It keeps me alive.

I figure I’ve had this illness since I was a little kid. I can remember many rages and mood swings as early as then. I was a handful as a child and my parents didn’t know how to deal with me much of the time. I wasn’t a bad kid, just supper hyper and always changing in my moods and behaviors. I embodied the forms of bipolar even then before I knew it and it’s affected how I’ve lived forever.

I don’t mean it’s been the cause I’ve been the way I have been for my life. But I do recognize that it has had as big an impact on me as just about anything in my world ever has done. It’s allowed me to create so much in the world in the way of my work and cool things for my community. I did that when I was hypomanic and I’ve been that way most of my life so I got a lot done.

But I also had the crashes that came after my super creative days. I’ve fallen into the Pit so many times I can’t count them. But I always come back out again and that’s the main thing I try to remember about this disease. It always changes and if I feel like dying one day I can count on the fact that one day soon I’ll feel alright again and go on with my life. Knowing this can save me if I let it in.

I have to save myself. No one else will. I constantly work on my issues and my awareness of being bipolar and what it means for my life. I have to live Very Consciously and take good care of myself in all ways – diet, rest, people I hang out with, things I choose to spend my time doing and all the rest.

It takes a lot of concentration to do this and that comes and goes but my will is strong and I have excellent help from my partner, counselor and psychiatrist and other healers so I’m lucky and grateful for their help. I still cycle every day and some days I fall so deeply into depression that I just can’t believe it. In so many ways I’m a model of recovery, but in others I’m still a basket case.

But you wouldn’t know it to meet me. I seem fine, a curse in itself in some ways. Looking like you’re not ill and yet being ill is challenging and why I started this blog in fact. To write about what it’s like. Mental Health issues are about as Invisible as you can get, unless you’re in a super bad state of course. But usually you can’t see it and that’s a problem. It needs to be more Visible.

The folks who started this Mental Health Project seem to feel the same way I do as far as talking about it and how so much is connected to our mental health. You can read more about their project here: http://acanvasoftheminds.com/2014/01/07/blog-for-mental-health-2014/. I feel a connection with these folks because of our similar views and my support of what they’re trying to do in making the invisible more visible.

As they say, mental health is Everyone’s issue, not just those of us who have a mental illness. So please do check out their site and learn some more about this cool project that has been going on for a couple of years now. I think it’s great and I hope you’ll consider putting their badge on your site too if you feel the way I do about it.

Education is our salvation if we want to lead whole lives and be accepted in our societies. I’m trying to help others by blogging here, and to help myself too. I always feel better after I write a good post, not to say they’re all good…. but I try. So remember that we all have mental health concerns and it’s important to acknowledge them and come out about them. We’ll change the world if we do….

Blogging for Mental Health in 2104 and beyond!

Steve