Welcome to my blog. In it I hope to present some comments on what it’s like to live and thrive with a variety of Chronic Invisible Illnesses. I’ll go into more detail in my posts but I’ll mention that I do have Chronic Intractable Pain, Bipolar Disorder Type II, Migraines, Fibromyalgia, Arthritis, Asthma and a Bad Attitude. ( Just kidding on that last one – gotta keep a sense of humour ya know!) I know this will garner me some crap but I also include in my array of difficulties that I’m Gay and tho I Love it and don’t mean to equate it with illness, or illness with it either, it’s still an Invisible Condition I live with and so I’ll write about it from time to time.
I’m 63 now and have lived with some of these things for my entire life like the Bipolar Illness, and the Asthma, with the Migraines for 36 years. I think the Fibromyalgia and Arthritis are more recent, like 20 some years, but I dunno for sure. It’s a long time to be ill and still try to live a good life but I have and still do. I’m on disability now tho and have been for almost 18 years. I hate it sometimes but I’m grateful for it and it allows me to survive pretty well and I have a wonderful partner who helps me in all ways.
I hope to be of service to my community with this blog and help people out who are struggling with similar issues to myself. I’ve been a”helper” all my life and I seem to have it in my blood. So I’ll try to stay positive and give good advice and encouragement and also to stay Real and give Hope for a better NOW and a fine tomorrow too.
I realize now after having this blog up for a little while that I should really say something more about the title. It’s provocative I know and I mean it to be. But maybe not in the way you might think. I’m talking about what it’s like to live with the feeling that your nerves have been stripped bare of all insulation and that you’re naked to the world because you don’t have any mulch left, as my gardener side would put it. I’m out of cushioning from the daily struggles of my life. I’ve had too much pain, too many times I was crazy and anxious and filled with panic, too many times when I thought I was surely going to die from it all that sometimes I just can’t cope anymore.
I remember one time when a trolley went by my apt. and I could literally feel the energy of the bus tearing my nervous system apart and it actually Hurt me it was so powerful. I mean in a physical sense, not just a metaphorical one. So when I use the term Naked Nerves I’m talking about a real phenomena that causes me distress in my ongoing life. I guess I’m looking to both give and receive a little support and comfort here in talking about it. So far I’m finding that with a variety of kind people and I’m so grateful for that. Thank you for reading and posting on my site.
Good Health and Happiness to you all, despite our Illnesses,